Winning Hands Massage
Intention and The Incurable Mind-Set
From EDS Today Column
We all know that Ehlers-Danlos Syndrome is a genetic defect in the
collagen of our connective tissue. We also all know that there is no cure
for it. Unfortunately, so do those health care providers who know anything
at all about EDS in the first place. This leads to the title of this
issue’s article – the Incurable Mind-Set.
I/you have EDS. I/you have soft tissue dysfunction and related
problems. EDS affects the soft tissue. There is no cure for EDS.
Therefore there is no cure for my/your soft tissue dysfunction. If I recall
correctly from my logic classes many, many years ago, this is known as
Circular Reasoning. It is also as faulty as our collagen.
While it may be true that there is presently no known cure for EDS as
such, extending that position to all soft tissue dysfunction simply because
one has EDS is pure nonsense. Yet, I see it happen all the time. And when
it does, the person with EDS starts a self-fulfilling, downward, defeatist
And too many health care providers take on one of two primary attitudes.
The first one is to simply wash their hands of us. Since there is nothing
they can or know how to do, they want no part of the EDS patient. Go
someplace else. The other primary attitude is invasive treatments involving
surgery or drugs. There may be no proof that these treatment protocols come
even close to being effective, but since it is the only thing they know HOW
to do, they resort to them out of desperation, out of a sincere, even if
misguided, desire to at least try SOMETHING.
There are some really serious problems with the Incurable Mind-Set. The
most important is that it is simply wrong. It is not true. It is
incorrect. It needs to be stamped out and eliminated as part of our thought
process. And more than a handful of health care providers need to be
reminded that, while EDS as such may be incurable at the moment, there are a
host of SYMPTOMS and associated dysfunctions that go along with it that ARE
curable, or at least treatable!
Shoulder issues are a good example. EDS affects the shoulder JOINT in
the form of lax ligaments, extra-stretchy tendons, etc, that allow for
things like shoulder sub-luxations and dislocations. This is the PRIMARY
issue, from which spring many possible secondary issues. Thoracic Outlet
Syndrome, especially the Pectoral Minor and Costoclavicular variants are
very common with those suffering EDS. Another common problem directly
related to these is frequent rib subluxations. Instability in the shoulder
joint can put pressure on the clavicle, causing it to sublux, which in turn
can put enough pressure against the sternum to cause one or more ribs to
sublux. One thing leads to another. And while the primary issue of EDS may
not at present be curable, the secondary outcomes CAN be effectively treated
with a variety of bodywork techniques.
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